Bienvenue au R\u00e9seau canadien de la LMC. Nous avons pour mission de fournir un soutien social, \u00e9motionnel et \u00e9ducatif aux personnes atteintes de LMC.<\/p>\n
Nous avons beaucoup de bonnes choses pour nous. Il existe une solide gamme de m\u00e9dicaments qui maintiennent efficacement les personnes en r\u00e9mission, leur permettant de vivre une vie normale. Les personnes vivant avec la LMC ont des enfants. Et le plus excitant, c’est qu’il devient possible de vivre sans m\u00e9dicaments.<\/p>\n
Alors pourquoi lan\u00e7ons-nous ce site web ?
\nIl y a quelques ann\u00e9es, nous avons organis\u00e9 notre premi\u00e8re conf\u00e9rence \u00ab\u00a0Living Well with CML\u00a0\u00bb \u00e0 Toronto. Il s’agissait d’une journ\u00e9e compl\u00e8te de formation, allant des derni\u00e8res recherches sur la LMC aux conseils sur la fa\u00e7on d’utiliser la nourriture pour g\u00e9rer les effets secondaires, en passant par le bien-\u00eatre \u00e9motionnel.<\/p>\n
La session qui a eu le plus d’impact est de loin celle qui s’adressait aux soignants. Mon mari Kevin s’y est joint, et il est revenu, d\u00e9crivant comment la conversation a tourn\u00e9 autour des effets secondaires qui changent la vie et de l’incertitude de l’avenir. Malgr\u00e9 les propos rassurants de l’infirmi\u00e8re qui a anim\u00e9 la session, l’heure \u00e9tait \u00e0 l’\u00e9motion. Des larmes ont \u00e9galement coul\u00e9 lors de la session suivante, lorsqu’un psychologue a r\u00e9pondu \u00e0 des questions sur la mani\u00e8re de g\u00e9rer l’inqui\u00e9tude et l’anxi\u00e9t\u00e9 qui accompagnent la vie avec le cancer et sur la mani\u00e8re de g\u00e9rer les relations tendues par le stress de la maladie. Ensuite, Kevin a demand\u00e9 : \u00ab\u00a0Si les nouvelles sont si bonnes \u00e0 propos de la LMC, pourquoi les gens pleurent-ils ?\u00a0\u00bb.<\/p>\n
Excellente question. Pourquoi les gens pleurent-ils ? Certains pleuraient parce qu’ils venaient de d\u00e9couvrir la LMC et avaient du mal \u00e0 accepter le fait que le cancer faisait d\u00e9sormais partie de leur vie. Certains pleuraient parce qu’ils \u00e9taient en deuil – en deuil de la perte de leur sant\u00e9, de la perte de la foi en leur corps, de la perte de leur \u00ab\u00a0ancienne\u00a0\u00bb vie. Et certains pleuraient parce qu’ils se trouvaient enfin dans un endroit s\u00fbr, o\u00f9 il y avait d’autres personnes qui connaissaient de premi\u00e8re main les d\u00e9fis que repr\u00e9sente la vie avec la LMC.<\/p>\n
Mais les larmes n’\u00e9taient qu’une partie de ce que cela signifie de vivre avec la LMC. Il y a aussi eu des histoires de force et de r\u00e9silience. Malgr\u00e9 des effets secondaires d\u00e9bilitants comme la fatigue, nous avons entendu des personnes qui ont pers\u00e9v\u00e9r\u00e9 et appris \u00e0 bien vivre avec cette \u00ab\u00a0nouvelle normalit\u00e9\u00a0\u00bb. Il y avait \u00e9galement des personnes dont la vie avait \u00e9t\u00e9 tr\u00e8s peu modifi\u00e9e par la LMC, mais qui souhaitaient rencontrer d’autres personnes partageant leur exp\u00e9rience.<\/p>\n
Que votre histoire corresponde au premier groupe, au second, ou que vous vous situiez quelque part au milieu, il y a quelque chose pour vous ici. Qu’il s’agisse d’informations sur les traitements, des derni\u00e8res nouvelles en mati\u00e8re de nutrition et de bien-\u00eatre \u00e9motionnel ou des points de vue d’autres personnes vivant avec la LMC, le R\u00e9seau canadien de la LMC a ce qu’il vous faut pour g\u00e9rer votre sant\u00e9 et vivre le mieux possible malgr\u00e9 la LMC. Vous n’\u00eates pas seul.<\/p>\n
Merci de votre visite,
\nLisa<\/p>\n","protected":false},"excerpt":{"rendered":"
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