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Wrapping up an amazing four days in Washington for the Patient Advocacy Summit: Regulations to Rights, Access and Equity – The Americas… So many exciting and humbling experiences.
In addition to meeting some amazing advocates from Latin America (I will share a photo later), and reuniting with some Canadian colleagues Cheryl Jacobs-Petruk Elizabeth Lye Barry D. Stein, I also had the incredible opportunity to hear what patient engagement means for the American Society of Clinical Oncology (ASCO), explore patient advocacy from the perspective of the National Cancer Institute and meet with U.S. Congresswoman Stephanie Murphy on Capitol Hill to talk about the state of U.S. healthcare, plans for making drug access easier for patients and also strategies to manage potential cancer drug shortages in Canada caused by importation of our drugs (thanks to Barry for that discussion).
Now on to the American Society of Hematology conference in Orlando.
CML Advocates Network
#patientpower #PatientsMatter #cmlnetwork
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Rob Snyder’s story is a reminder that our work is far from over.
Rest in Peace, Rob. xxoo
CML Friends of Western Canada
CML Advocates Network
The Leukemia & Lymphoma Society of Canada
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