Recent Posts
Is the COVID-19 vaccine safe?
January 9, 2021Dr. Jeff Lipton: If you are wondering whether to get the vaccine or not, the answer is a big, fat, YES.
COVID Q&A: May 14, 2020, 7pm
May 10, 2020In these crazy and uncertain times, knowledge is power. Educate yourself on how you can stay safe.
COVID-19: We will get through this. Together
March 31, 2020COVID-19 is scary, anxiety-provoking and uncertain. But our community will get through it.
Patient advocacy has come a long way. But when can we call it a revolution?
December 1, 2019Stories like Rob Snyder's are a reminder that our work is far from done.Upcoming Events
SAVE THE
DATES!!
Toronto – All in-person meetings have been halted due to COVID-19
9:30am – 12:30pm – ON HOLD
Ottawa CML Group Meet-up – Contact group leader Theresa Harvey at t.harvey@rogers.com for details
It's Rare Disease Day, folks. Canada needs a strategy to reduce wait times for diagnosis, improve access to treatments and encourage clinical trials. Read Blaine Penny's story on Healthing by Postmedia about how his son had routine surgery for appendicitis and woke up unable to speak. MitoCanada Canadian Organization for Rare Disorders #RareDiseaseDay2021 #canada4rare
www.healthing.ca/diseases-and-conditions/rare-diseases/lack-of-strategy-hurting-patients
Rare Disease Day: Lack of strategy is hurting patients
www.healthing.ca
People living with rare diseases often wait years for a diagnosis and lack access to treatments and life-saving research.One of concerns and worries I hear most about from people living with cancer and other chronic illness is how hard it is to date and to find a partner who 'gets it.' There's also a feeling of guilt that we are pinning someone down, being a "burden," etc. And while finding true love maybe a little more complicated, it can happen 🙂 And as one of the people in this story point out, while cancer may be your 'baggage,' someone else may have a crazy mother, financial struggles or depression — it's all the same. Whether it's a disease or a bad temper, we all come with our 'stuff.'
Healthing by Postmedia
www.healthing.ca/wellness/chronic-love-dating-sex-and-living-with-illness
Chronic love: Dating, sex and living with illness
www.healthing.ca
Modern dating can be hell. But when you add a chronic illness to the mix, there are so many additional variables to consider.Hey everyone ... a CML peep needs our help.If you happen to know of anyone of Lebanese descent who can swab their cheek and possibly be a stem cell donor, please share!
www.healthing.ca/diseases-and-conditions/cancer/blood-cancer/stem-cell-myths
Stem cell myths, lack of diversity hurts urgent search
www.healthing.ca
Laura Laycock Collard is part Lebanese, which fits the description of less than two per cent of Canadians in the registry.Latest Tweets
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It's been one hell of a year, and while life has been hard for all of us, for those dealing with a serious illness,… https://t.co/26vUxrCkw0
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Really love @JonesyJourn's What it Feels Like Series on @healthing_ca as we amplify the patient and caregiver voice… https://t.co/fL2lxMkaHx
