Recent Posts
Patient advocacy has come a long way. But when can we call it a revolution?
December 1, 2019Stories like Rob Snyder's are a reminder that our work is far from done.
World CML Day is on September 22. Where will you be?
September 4, 2019Join the CML Network in Halifax on September 22!
How do you live after saying goodbye?
August 22, 2019Feeling guilty that you're alive? Understanding survivor's syndrome and why it's time to ask a different question.
We're not done yet.
June 17, 2019Some people with CML still have transplants. Some can't afford their drugs. Some die. There is still so much to do.Upcoming Events
SAVE THE
DATES!!
Toronto – Summer 2019 -TBD, September 28, December 14
9:30am – 12:30pm Toronto CML Group meet-up. Riverdale Hub, 1326 Gerrard Street East. Email info@cmlnetwork.ca for more information and to RSVP
Ottawa CML Group Meet-up – September 17, November 19
7 pm-9 pm Ottawa Regional Cancer Foundation, 1500 AltaVista Drive. Email t.harvey@rogers.com for more information and to RSVP.
Conference: Living Well with CML – Toronto June 15 – click here to RSVP
Wrapping up an amazing four days in Washington for the Patient Advocacy Summit: Regulations to Rights, Access and Equity – The Americas… So many exciting and humbling experiences.
In addition to meeting some amazing advocates from Latin America (I will share a photo later), and reuniting with some Canadian colleagues Cheryl Jacobs-Petruk Elizabeth Lye Barry D. Stein, I also had the incredible opportunity to hear what patient engagement means for the American Society of Clinical Oncology (ASCO), explore patient advocacy from the perspective of the National Cancer Institute and meet with U.S. Congresswoman Stephanie Murphy on Capitol Hill to talk about the state of U.S. healthcare, plans for making drug access easier for patients and also strategies to manage potential cancer drug shortages in Canada caused by importation of our drugs (thanks to Barry for that discussion).
Now on to the American Society of Hematology conference in Orlando.
CML Advocates Network
#patientpower #PatientsMatter #cmlnetwork
Rob Snyder’s story is a reminder that our work is far from over.
Rest in Peace, Rob. xxoo
CML Friends of Western Canada
CML Advocates Network
The Leukemia & Lymphoma Society of Canada
One of our CML peeps is facing a transplant and has set up a GoFundMe page to help her cover the costs. Please consider giving if you can, or sending a message of hope.
Joannie’s Cml Busters
Richard Main
Click here to support Help Lan Fight Leukemia and Bone Marrow Transplant organized by Richard Main
Richard Main Help Lan Fight Leukemia and Bone Marrow Transplant Dear Friends and Family,I need your help. The MOST DECISIVE struggle is approaching. I am Lan,
Latest Tweets
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Great morning with @pfizer talking health literacy with my fellow advocates @GioraSharf and Zack Pemberton-Whiteley… https://t.co/fttVKfnmX6
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RT @ZPWLC: Interesting breakfast meeting at #ASH19 with @pfizer on the topic of health literacy. 50+ attendees at 7am! Might e… https://t.co/4LmNy32Nk9
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When we lose patients like Rob Snyder simply because no one paid attention, it reminds me how much more work there… https://t.co/ft2dEGBH9A
