Recent Posts
World Health Organization Medical Alert: Iclusig/Ponatinib
February 1, 2019Counterfeit Iclusig has been identified in Turkey, Argentina, Switzerland and sold online.
Remembering Nancy
November 27, 2018Nancy, thanks for making a difference.
Still standing
October 15, 2018Once you connect with a community, it's always a part of you.
What are you doing on Sept 22?
August 10, 2018Mark World CML Day with us in Edmonton.Upcoming Events
SAVE THE DATES!!
Ottawa – February 19, April 16, June 18, September 17, November 19
7 pm-9 pm: Ottawa CML Group meet-up. Ottawa Regional Cancer Foundation, 1500 AltaVista Drive. Email t.harvey@rogers.com for more information and to RSVP.
Toronto – March 30, June 22, September 28, December 14
9:30am – 12:30pm Toronto CML Group meet-up. Riverdale Hub, 1326 Gerrard Street East. Email info@cmlnetwork.ca for more information and to RSVP
Great post from fellow CML’er Cadence Grace who is preparing for a transplant.
We all know what it’s like to be the one who is struggling. The people around us struggle too, desperately wanting to make it better for us. They say things like, "at least you are alive," "whatever doesn’t kill you, makes you stronger," "You can fight this!," "You got this!" "God wouldn’t give you anything you couldn’t handle," or the worst one: "Oh, leukemia?? Ya, I once worked with a guy who died from leukemia. Oh, but that’s not going to be you." [Eye roll] When terrible things happen to the ones you care about, there is often nothing that can be said to make it better, and you don’t need to try. All that’s needed is a hug, or a light touch on the arm to let that person know you are there. Just one simple action speaks more than anything that can ever be said. Right?
Brené Brown
Several years ago, I gave a lecture in London at RSA (The Royal Society for the Encouragement of Arts, Manufactures and Commerce). The RSA asked the amazing animator and illustrator Katy Davis (Gobblynne Animation) to bring a short section of the lecture to life.
Now "Wanna sandwich?" is our favorite line! Enjoy.
Tell anyone who will listen! Just a simple cheek swab could save someone’s life!
Register to donate stem cells | Canadian Blood Services
blood.ca
Before you register to become a stem cell donor, it’s important to understand what’s involved. Be sure to review our donor eligibility and stem cell registration information below. When you’re ready, complete our online knowledge test and register to donate.
This article mentions the recent discovery of fake Iclusig (Ponatinib). As always, make sure you know where your medications are coming from. If you use an online supplier, check the batch numbers with the manufacturer to ensure its authenticity.
cbc.ca
A closer look at the day’s most notable stories with The National’s Jonathon Gatehouse: counterfeit drugs that have little medicinal value, and in some cases can harm, are a major problem worldwide.
Latest Tweets
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RT @Marty_Fried: Saw a new patient today who was transferring care to me. When I hear this I usually ask what I can do to be the doc… https://t.co/9BB5bzuP80
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RT @GMPNAN: Save the date! Global Mpn Advocates Network Horizons conference 2019 ! October 2019 lisbon portugal!.oct 25-27!
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RT @cmlnet: ALERT: To all CML patients: @WHO has issued a medical product alert: falsified versions of #ICLUSIG #Ponatinib disc… https://t.co/uukMa6VdXP
