Jim Egerton: Life after CML

September 14, 2015

Jim Egerton shares what living with CML means to him.

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The Canadian CML Network

3 days ago

Wrapping up an amazing four days in Washington for the Patient Advocacy Summit: Regulations to Rights, Access and Equity – The Americas… So many exciting and humbling experiences.
In addition to meeting some amazing advocates from Latin America (I will share a photo later), and reuniting with some Canadian colleagues Cheryl Jacobs-Petruk Elizabeth Lye Barry D. Stein, I also had the incredible opportunity to hear what patient engagement means for the American Society of Clinical Oncology (ASCO), explore patient advocacy from the perspective of the National Cancer Institute and meet with U.S. Congresswoman Stephanie Murphy on Capitol Hill to talk about the state of U.S. healthcare, plans for making drug access easier for patients and also strategies to manage potential cancer drug shortages in Canada caused by importation of our drugs (thanks to Barry for that discussion).
Now on to the American Society of Hematology conference in Orlando.
CML Advocates Network
#patientpower #PatientsMatter #cmlnetwork … See MoreSee Less

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The Canadian CML Network

1 week ago

Rob Snyder’s story is a reminder that our work is far from over.
Rest in Peace, Rob. xxoo
CML Friends of Western Canada
CML Advocates Network
The Leukemia & Lymphoma Society of Canada … See MoreSee Less

Photo

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The Canadian CML Network

4 weeks ago

One of our CML peeps is facing a transplant and has set up a GoFundMe page to help her cover the costs. Please consider giving if you can, or sending a message of hope.
Joannie’s Cml Busters
Richard Main … See MoreSee Less

Click here to support Help Lan Fight Leukemia and Bone Marrow Transplant organized by Richard Main

Richard Main Help Lan Fight Leukemia and Bone Marrow Transplant Dear Friends and Family,I need your help. The MOST DECISIVE struggle is approaching. I am Lan,

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Great morning with @pfizer talking health literacy with my fellow advocates @GioraSharf and Zack Pemberton-Whiteley… https://t.co/fttVKfnmX6

2 days ago
RT @ZPWLC: Interesting breakfast meeting at #ASH19 with @pfizer on the topic of health literacy. 50+ attendees at 7am! Might e… https://t.co/4LmNy32Nk9

2 days ago
When we lose patients like Rob Snyder simply because no one paid attention, it reminds me how much more work there… https://t.co/ft2dEGBH9A

1 week ago